Tuesday, May 25, 2010

I'm Better than Grey's Anatomy

No, you aren't watching ER or Greys, this is my life.

In case you missed the first installment which included a lot of Ear, Nose, and Throat tests, Audiologist tests, an ENG, a potential brain tumor (that wasn't) and an MRI that caused a scary allergic reaction, than feel free to catch up HERE

Well, one month after my MRI, I finally got to talk to my ENT about my results (b/c duh, why would they call me?) No brain tumor (hells to the yes), but I was not in the clear either. He asked me if I'd ever had numbness , tingling in my limbs, etc.

I'm no fool, and I knew where he was going. I would say that one of my greatest life fears is developing multiple sclerosis. My poor grandmother had it for all of her adult life and she was miserable. She couldn't drive, she was in a wheel chair, she couldn't see, she couldn't do much of anything. She also died a very early death as a result of complications of MS. MS is never far from my mind.

He told me that there wasn't any reason to be alarmed, but that my MRI indicated that I had some lesions on my brain that could be indicative of MS or Lymes Disease (hence the blood test). He waited a month to tell me because he didn't think that it was that, but he had to be certain.

I called the radiologist to get an actual report about what was going on. Apparently, the radiologist found three lesions that are bilaterally located in my frontal lobe, which are non specific. They could be a myriad of things including MS, Lymes, Stroke, Small blood vessel disease etc.

Cue freaking the F out.

I was able to take the Lymes test right away. The Lymes disease test came out negative. One small victory.

I was finally able to get into the neurologist on Monday. I will have you know that I've never been more nervous in my life. My heart was beating a mile a minute, my leg was shaking and they left me in the waiting room for an hour.

He asked me a lot of questions, did a short exam where he hit me with that hammer thing a few times and reviewed the MRI. I wish I had a tape recorder so that I could remember exactly what he said, but he sounded positive. He said that the lesions (he found 4 to the radiologist's 3) were detected before the contrast fluid was administered. He said that after the contrast fluid was administered, the lesions were undetectable, which doesn't follow along with the pathology of MS (this is when I started smiling again). He also told me that he doesn't think that it's Lymes or any of the other disorders that were listed above either.

The plan of action- more blood draws (b12 deficiencies can cause these lesions as well) and a follow up MRI in 6 months to see if anything changes. I also have strict orders to contact him if I have any numbness, weakness, loss of vision or loss of speech.

In the meantime, I'm celebrating.

7 comments:

Ms. Attitude said...

Holy Cow! I hope it all works out.

Classy Fab Sarah said...

This is as crazy as grey's anatomy!! Praying for you! Hang in there!

Courtney said...

Not fun at all! Praying that none of the icky stuff happens and that increasing your b12 intake fixes it all.

Melissa said...

I'm glad that they don't think it's anything super serious! I hope it stays that way and you're better ASAP! SO scary!

~Mrs. Guru~ said...

Glad your ok. I would be freaking out as well.

Yellow House said...

I can't imagine the stress you've been through. I hope things continue to work out for the best. Hang in there! Thinking of you!

J said...

holy crap....im sorry. this sucks. have you gotten a second opinion???